ABOUT
Autoimmune and immune-mediated inflammatory diseases (IMIDs) such as rheumatoid arthritis, lupus, psoriasis, psoriatic arthritis, spondyloarthritis, and inflammatory bowel disease affect more than 230 million people worldwide. They are often invisible, unpredictable, and life-altering. Yet for every flare, fatigue, or setback, there are stories of resilience, science-backed solutions, and communities of care.
Living with Fire is a patient-centered handbook that brings them all together. Written in collaboration with doctors, researchers, patients, caregivers, and advocates, this book offers both practical tools and heartfelt wisdom for navigating the challenges of chronic illness.
Inside you’ll find:
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Science made simple: Understand your immune system, lab results, and the latest research without the jargon.
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Treatment insights: Learn about cutting-edge drug advancements, integrative approaches, and how to engage with your healthcare team.
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Daily strategies: Evidence-based guidance on sleep, diet, exercise, stress management, and lifestyle choices that make a difference.
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Real voices: Inspiring patient and caregiver stories that remind you that you are not alone.
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System navigation: Tips on working with providers, navigating insurance, and connecting with nonprofits and advocacy groups.
Whether you are newly diagnosed, supporting a loved one, or searching for ways to live fully with a long-standing condition, Living with Fire will meet you where you are—with knowledge, compassion, and hope.
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Philip Mease, MD
Master of the American College of Rheumatology
“For patients and families facing autoimmune disease, Living with Fire is an invaluable guide. It combines trusted science with practical wisdom for everyday life. As a rheumatologist, I see the daily challenges my patients face. This book brings clarity, compassion, and credible information to those navigating complex conditions.”
Lisa See
New York Times bestselling author and autoimmune patient
"Living with Fire offers patients living with an autoimmune disease—like me—useful information and valuable ideas for accommodating the day-to-day challenges of pain, fatigue, and not always understanding the medical system.”
Rob Wical
Former NBA Mascot with axial spondyloarthritis
“As a patient, I understand the need for a voice to help me get through the quiet and painful moments in my life. Living with Fire is just that - a reference for me to run to when I need an extra handful of advice, or cheering on to continue to thrive in my everyday life.”
Tiffany Westrich-Robertson
CEO, International Foundation for Autoimmune & Autoinflammatory Arthritis (AiArthritis) and autoimmune patient
“As both a patient and CEO of an international organization representing those with autoimmune diseases, I know how vital clear, respectful communication is between doctors and patients. This book beautifully combines medical insight with lived experience, making it an invaluable, easy-to-read resource for improving outcomes.”
Disclaimer
This publication is provided for general informational and educational purposes only. The content reflects sources believed to be reliable, along with patient experiences and medical references available at the time of writing. Information and statements regarding dietary supplements have not been evaluated by the U.S. Food and Drug Administration and are not intended to diagnose, treat, cure, or prevent any disease.Each individual’s medical situation is unique. If you have questions about your health, symptoms, or treatment, consult a qualified healthcare professional. Do not use this book in place of professional medical care. Do not use the information in this book to diagnose or treat a health condition, prescribe medication, or replace professional medical care. Always consult your healthcare provider before beginning any new medication, nutritional plan, herbal or homeopathic supplement, or treatment. If you suspect that you may have a medical condition, contact a licensed healthcare provider promptly. Never disregard or delay seeking professional advice because of something you have read in this book. Nothing in this book creates a doctor–patient relationship between the reader and any of the authors, editors, or contributors.